Living with MCAS and POTS: A Patient's Journey of Struggles and Triumphs - An Interview with Kelly

Linda has the pleasure of speaking with Kelly, who shares her journey MCAS and POTS. Kelly first noticed that something was wrong with her body when she was a child due to severe GI symptoms, which led to her receiving her first colonoscopy at the age of ten. Despite years of experiencing worsening symptoms, Kelly received a diagnosis in 2019. She describes her frustration and the challenges she faced while seeking answers from various specialists, highlighting the systemic factors within the healthcare system that make it difficult for patients like herself to receive proper care. As a social worker and a patient herself, Kelly provides unique insights into how care for undiagnosed patients could be improved, emphasizing the importance of physicians believing and trusting their patients, providing them with resources, and access to care to help them find accurate diagnoses.